Jack has Cerebral Palsy (Level 5) and experiences significant movement limitations. He needs complete assistance for almost all activities and uses a wheelchair. Because of his medical needs, he requires close supervision and gentle, patient care throughout the day. Jack usually sleeps from 10pm to 5am and rarely wakes in the night.
Some of the support Jack needs includes:
- PEG feeding for all meals, fluids, and medications
- Remaining upright after feeds due to dysphagia
- Regular water flushes to keep his PEG tube clean
- Nappy changes
- Occasional venting to relieve trapped air
- Chest physio to keep him comfortable
- Support with muscle spasms and dystonia, which can sometimes be painful
- Total support with movement — he weighs around 13kg and will need a hoist as he grows
Jack is also registered blind and has epilepsy. But despite all these challenges, he is a happy, warm, affectionate little boy who thrives on love, touch, and connection.